Genomic newborn screening: public health policy considerations and recommendations.

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From Guideline Database

This database contains updated guidelines, policies and recommendations on genomic research and practice, as provided by professional organizations, federal advisory groups, expert panels and policy groups.

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• Genomic newborn screening: public health policy considerations and recommendations.  
  Published 2017 ( Global Alliance for Genomics and Health's Regulatory and Ethics Working Group)
• Parental permission for pilot newborn screening research: guidelines from the NBSTRN.  
  Published 2014 ( Newborn Screening Translational Research Network (NBSTRN))
• Appropriateness of newborn screening for [alpha]1-antitrypsin deficiency.  
  Published 2014 ( Alpha-1 Foundation)
• Diagnosis of Cystic Fibrosis: Consensus Guidelines from the Cystic Fibrosis Foundation.  
  Published 2017 ( CF Foundation)
• Diagnosis of Cystic Fibrosis in Screened Populations.  
  Published 2017 ( CF Foundation)

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